Thursday, June 9, 2016

Callie Update

Callie has been doing great! She is smart, funny, loves to be with her family, enjoys singing and school and field trips and helping around the house and property.


She had some extensive testing done where Portland Shriner's turned her into "Robo-Callie" by putting 36 markers and 18 electrodes over points of her body.  A computer watched her walk and analyzed her gait. The results, while not a surprise, were disheartening and hard to hear.


The truth is, while Callie lives life and is doing well, her pain level has increased... drastically. To the point she doesn't want to walk some days. (This is her good foot, her other foot is far more deformed.)




Callie needs help to get out there with her siblings to play. She will say that she will stay on the sidelines and watch.


But she really wants to be with the action!


The test results confirmed what we are seeing. Her hamstrings and heel cords are all getting too tight for her to function. They are putting so much pressure on her bones that things are further deforming...ultimately causing her pain.


Which is why she is choosing to be in her wheelchair more.


Our options are 

1.) Surgery to lengthen her heel cords and hamstrings and abductors. And to correct the spiraling of the right femer. And to correct her left midfoot, effectively straightening her foot and giving her an arch.


2.) Part of this surgery, knowing the parts we do will be broken down by the parts we do not do.


3.) Wait it out. Let this natural downward spiral continue and see her use her chair more and more.


Unfortunately, the best option o the table is to have her undergo major inpatient surgery, probably in September.


We would greatly appreciate prayers for wisdom, guidance and peace and for the skill of the surgeon.

Now...enjoy this very short video of Robo-Callie dancing!


4 comments:

  1. I'm sorry to hear Callie is in so much pain,and I can o KY imagine the heart ache that causes you as her mother, I will certainly be praying for her!

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  2. I'm sorry to hear Callie is in so much pain,and I can o KY imagine the heart ache that causes you as her mother, I will certainly be praying for her!

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  3. I clicked on both like and dislike. I love Callie's spirit and grace, but I simply ABHOR the pain and all the challenges she is faced with... Sending her our love and prayers!

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  4. So sorry to read this news this morning. Praying. And let us know if there is any way our family can help yours. Now, or in September or whenever. Love and miss you guys.

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